Results

First off I want to say thank you to everyone who prayed and thought of us during this whole experience.  It helps so much to know that you have people behind you when you need them to be.  

We have ruled out all of the major kidney and immunity diseases so that is good news.  What jack possibly has is called Minimal Change disease ( http://en.wikipedia.org/wiki/Minimal_change_disease )  and I say possibly because we still aren't 100% sure he has this because he isn't showing one of the key symptoms which is Edema.  When the pathologists blew up the cells in his kidney, they could actually see where the protein is leaking and it does in fact look like its minimal change disease.  Hence the possible diagnosis.  We will start a dose of steroids and see if he responds, if he does then we know that he does have this disease.  If he doesn't respond then we go forward with genetics testing (blood tests) to see what else it could be.  We see the doc on Monday afternoon to get the prescriptions and testing strips to test his urine.  This is how we will see if the meds are working - checking the protein in his urine.  We should know if he is responding to the meds in about two weeks but it could take 3-4 months to see the proteins in his urine return to normal.